A friend of mine from Kansas City, MO (where we lived before moving to Wake Forest, NC) forwarded this to me. It's the story of a young family with 3 beautiful little boys. In the past few weeks they found out that the oldest 2 sons have a life-threatening condition known as "Niemann Pick Disease Type C" or also known as "Childhood Alzheimer's". Over time the children "forget" how to walk, talk, and function. The estimated life expectency of children with NPC is 9-15 years.
This disease is always fatal which ultimately rob's innocent children of their life's!
On their website is an area where you can donate to help them. The money will go straight to the family to cover their costs for therapeutic equipment, medical expenses, or whatever the family needs.
Please consider giving a financial gift to this family. I know if these were my children I would be praying for a miracle. Maybe we can't provide a miracle cure, but we can take some stress off the family so our combined help can be a financial miracle for them.
Please consider helping. Every penny counts.
1 comment:
Hi there!
I just wanted to say that it is really heart warming to know that people who are not directly affected by a disease will voluntarily try to gain support and recognition with no ulterior motives. The world needs more people like you!
I just wanted to let you and your readers know that Niemann Pick C "NPC" stems from a larger group of diseases. Just like there are many forms of cancer, NPC is just one type of Lysosomal Disease. Every 30 minutes, a baby is born with Lysosomal Disease.
Please learn a little more by visiting the Hide & Seek Foundation, www.hideandseek.org or the National Tay Sachs & Allied Diseases Association, www.ntsad.org; you will see that NPC is just a part of a bigger problem.
Thank you for being who you are!
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